Inspiring life despite a diagnosis

Inspiring life despite a diagnosis


Latest Episodes

BRITTNEY AND DERIK
March 05, 2024

Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life.Their daughter has been a joy in their life despite some of the difficulties that come when having a child

Wendy and Matt: Down syndrome
October 30, 2023

When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, "I think I every emotion known, I was going through. I experienced

Madison and Ty: Expecting a Terminal Baby
June 27, 2023

During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their babys bladder was large, and his kidneys we

Erika and Steve: Autism
September 22, 2022

First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, He went to daycare and we would go in and not

Kristy and Andrew: Pfeiffer Syndrome
April 04, 2022

utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.

Mariah: THAP12 Mutation
December 20, 2021

for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.

Danielle: DDX3X syndrome
August 23, 2021

Dani and her family fought hard to receive an official diagnosis for her daughter Hayden. After many specialists they finally received a diagnosis of DDX3X. So rare that there that at that time ther

Carrie: Gervais syndrome, Cerebral Palsy, Autism, and SCN1A Gene Mutation
June 30, 2021

Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.

Wrayanne: Lennox-Gastaut syndrome
June 07, 2021

Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgans future.

Jess: Bronchopulmonary Dysplasia
April 22, 2021

Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughte...